Tuesday, April 24, 2012

Life is Hard

I haven't blogged in such a long time because life has just been too hard.  The training of a Diabetic Alert Dog is very hard during this puppy stage.  We get glimpses of his greatness with the alerts he already does, but the in-between time is exhausting and frustrating.  Parents of D.A.D.s told us that for the initial 6-8 months we'd be doing more blood sugar checks and getting less sleep.  This was hard to imagine as it seemed we couldn't possibly exist on any less sleep or do anymore checks than we were already getting and doing, but those parents were right.  We are completely exhausted, beyond exhaustion actually, and, it's blood sugar checks galore.

When I get this exhausted my world seems to crumble in on me even more than usual.  During a cold, rainy, Sunday afternoon, 8-year old soccer game, I overheard a sweet mama whisper comfortingly to her little daughter, "After your brother's game, doesn't a hot chocolate at McDonald's sound good?  Let's have some hot chocolate."  These kind of whispered sweet-nothings to one's child are what put me under the table.  I know this is hard for anyone to imagine how I could feel so sorry for myself and my children with such a comment, but it does.  It does because, when I'm tired, these simple realizations slap me in the face with the fact of, "We can't do that.  We can't just go out and get a simple, little, hot chocolate because it'll throw our night time sugars out of whack, and Little Guy will throw up and have a raging, bad stomach ache because of the gluten in the hot chocolate."  This easy, simple pleasure, picked up at a drive-through window that everyone else does and barely even thinks about as a pleasure, is denied, denied, denied for my boys who would positively LOVE a hot chocolate at 6:30 p.m. after a freezing, cold, rainy soccer game.  That's why I hate these diseases.  Diabetes and Celiac Disease STINK!  They stink like rotten tomatoes, like week old garbage cans, like dog poop covered in flies, like chunky throw-up on the sidewalk.  I hate them.

A lot of people would say to me, "Well, at least your kids don't have cancer."  That's true, and when I'm not so terribly exhausted, I can look on the brighter side of things and be grateful for what we do have (like the ability to even be out on the soccer field, although even that is darkly overshadowed by the CONSTANT concern of blood sugars being out of whack and my son possibly collapsing out on the field because his sugar went too low, but still he's out there, one would say, right?).  Anyway, when I'm this tired, what I want to say is, "Well, at least you can go pick up a hot chocolate at McDonald's at the drive-through window and be comforted by its taste and warmth on a rainy, cold day when you have cancer."  I'm being ugly, I know.  A child with cancer wouldn't even be able to hold the hot chocolate down or enjoy it, so I'm not even being realistic, and certainly not sympathetic.  I'm sorry, so very sorry.  There is so much suffering out there, terrible, painful suffering in this world.  This is my heart of hearts, sometimes, the heart I have to go to Jesus with and confess the ugliness to.

There you have it, my deepest thoughts, my confession, my selfish, ugly thoughts and my need for Jesus to wipe it all away and renew my spirit.  Come Lord Jesus, Come.


  1. Oh, my dear Susan! I have been meaning to write and tell you -- but you know I am the queen of procrastination! But this made me stop and take action. Every day down here in O'do there is a commericial showing a girl swimming and a mother's voice comes on saying "I love it that my daughter is a fish. But when she was diagnosed with ashma, I was overwhelmed. I didn't know" -- and I never get any farther because I am thinking, "HAH! You should meet my niece!" and I immediately send up a prayer for you to have continued strength, courage, and faith. Love to all of you!

  2. Susan, Mom just sent me to your blog! So brave of you to put this out there and I know that it will help others! It is amazing that you get through this all and I wish that I were closer in proximity and could help! But... will always help with my prayers and love for you! Can't wait to see you in October! xoxo Peggy